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Programs All programs are FREE to children with cancer and their entire family
PCFLV programming is based in heavy part on the National Action Plan for Childhood Cancer, a report of the National Summit Meetings on Childhood Cancer, prepared by the American Cancer Society in 2000 which specifically targets 5 areas of need: Access to Care and Pattern of Care, Advocacy and Professional Issues, Long-Term Care and Survivorship, Patient and Family Quality of Life, and Research Priorities. The Pediatric Cancer Foundation of the Lehigh Valley focuses on two of these areas, specifically, quality of life and long-term survivorship. We follow a Continuum of Care Model, as we provide direct services from date of diagnosis onward.
Programs and Services: PCFLV can help children LIVE with their cancer.
1) Quality of Life - Helping children with cancer, siblings and caregivers enjoy life, despite cancer. a. Community Arts Program i. Crayola Factory ii. DeSales University Act 3 Theatre b. Creative Arts Program i. Art Classes ii. The Little Gym iii. Cooking Classes
c. In-Patient / Out-Patient Services i. Chemo Circus Days – Partnership with Leukemia Lymphoma Society to bring fun and various therapeutic disciplines to Lehigh Valley Hospital Center Pediatric Specialty Care Center to be enjoyed by children receiving chemotherapy and other related modalities. ii. In Patient Therapy Program – Individual and group coordinated therapeutic services available to children in-patient at Lehigh Valley Hospital Center, 4th floor. d. Annual Events: Coordination and provision of recreational activities for affected children, including the following: i. “Kick for Kancer” - This annual program provides children affected by cancer access to a one-day soccer camp run by student volunteers from local schools and local professional coaching with a parent respite tent.
ii. “Gym & Swim” - This annual one-day program provides aquatic and PT/OT components into a fun session of teamwork and perseverance.
e. Monthly “Family Night” activities – Ongoing monthly programs designed to help provide special family time with other families to enjoy simple things away from hospitals, doctors, treatment and fear. 1. Movie Night 2. Zoo Pass 3. Pizza Party 4. Paint your own pottery class 5. All About Beads 6. Halloween Party 7. Easter Egg Hunt 8. Summer Picnic
f. Caregiver – Provide outlets for caregiver recharge and rejuvination. 1. Caregiver Spa Day – Allows caregivers to enjoy a day at the spa on us! 2. Date Night – in partnership with The Little Gym. We provide a special respite outing for the caregivers while the children and siblings are cared for in a safe, structured environment.
2) Long Term Survivorship - Help with late effects, long-term care, school, education, and transition. a. Education i. Education Workshops: rights, responsibilities direct intervention, tutoring or helping them pay for or locate appropriate resources. ii. Education Folders full of resources, information, guidance, advocacy – updated on a regular basis, provided to all families iii. Coordinate with local schools to share information; offer workshops in schools to educate teachers and educators
b. Transition to Adulthood i. Insurance issues (ped to adult) ii. Understanding drugs and long term effects iii. Empowerment for independent living
c. Resources i. The development and implementation of an educational resource center, which will allow PCFLV to maintain and deliver a knowledge base of, and provide referrals to, various cancer resources available within and outside of the Lehigh Valley. Collaboration effort. 1. Obtain library of books and other resource guides 2. Obtain chemotherapy resources 3. Obtain school resources
d. Support i. Support Groups - Hosting quarterly or monthly support group meetings (as the need exists) for the parents of children with cancer so as to foster communication and support among families dealing with a cancer diagnosis, with each meeting focused on a different discussion topic relevant to the families of children with cancer and provides a separate but safe environment for the children and siblings during the parents program. 1. Professionally Facilitated 2. Partnership with Camelot for use of space 3. Program for the children and siblings – art based or play therapy based ii. Direct Connections – Parent 2 Parent / First Connect
e. Community i. Partnering with other organizations similarly interested in improving the lives of children with cancer and their families. ii. Raising awareness of Pediatric Cancer within the community through fairs, workshops, fundraisers, walk or bike -a-thons. iii. Pediatric Cancer Advocacy – increase awareness and affiliations with other pediatric cancer organizations iv. Join Alliance for Childhood Cancer v. Fundraisers
Use the form below register to inquire about any programming:
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